It's our final day in room 13. We want to wish you a very Merry Christmas and Happy and safe new year.
Photos from our BIG DAY OUT! Here we are lined up and ready for a tug of war against room 14.
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Aria is three-and-a-half years old from Manurewa, Auckland, New Zealand. Aria received her gift of life on the 6th of February, a small bowel, kidney, liver and pancreas transplant at the Nebraska Medical Center, in Omaha, USA.
Soon after birth she was diagnosed with a very rare condition of the bowel known as total intestinal aganglionosis or total Hirschsprung’s disease. There is no cure and it means she will never be able to digest food. [More info: Click Here]




